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Research
Evaluation of the Fetal Alcohol Spectrum Disorder Hub Australia websiteTo evaluate use and utility of the Fetal Alcohol Spectrum Disorder (FASD) Hub Australia website.
Research
Lived experiences of the diagnostic assessment process for fetal alcohol spectrum disorder: A systematic review of qualitative evidenceEarly assessment and diagnosis of FASD are crucial in providing therapeutic interventions that aim to enhance meaningful participation and quality of life for individuals and their families, while reducing psychosocial difficulties that may arise during adolescence and adulthood. Individuals with lived experience of FASD have expertise based on their own lives and family needs. Their insights into the assessment and diagnostic process are valuable for improving service delivery and informing the provision of meaningful, person- and family-centered care. To date, reviews have focused broadly on the experiences of living with FASD.
Research
Fetal Alcohol Spectrum DisorderSupports healthcare professionals to understand how to make a diagnosis of FASD and to provide support for those diagnosed with FASD
The list of The Siblings Project publications
The studies this project has conducted
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News & Events
NHMRC Fellowships awarded to support child health researchFour leading The Kids Research Institute Australia researchers have been awarded Fellowships from the National Health and Medical Research Council (NHMRC).
News & Events
Community is tackling FAS in the Fitzroy ValleyAmong the highest rates of Fetal Alcohol Syndrome (FAS) worldwide have been reported by Aboriginal community leaders in the remote Fitzroy Valley.
Research
Collaborating with consumer and community representatives in health and medical research in Australia:The objective of this tudy was to collaborate with consumer and community representatives in the Alcohol and Pregnancy Project from 2006-2008
Research
RE-AIM Evaluation of the Alcohol and Pregnancy Project: Educational Resources to Inform Health ProfessionalsThe objective was to evaluate the Alcohol and Pregnancy Project that provided health professionals in Western Australia (WA) with educational resources