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A validation study of a modified Bouchard activity record
We compared parent/carer-reported physical activities with the number of steps counted by an accelerometer in girls and women with Rett syndrome.
Physical and mental health of mothers caring for a child with Rett syndrome
We wanted to find out whether mothers with a child with Rett syndrome who were more physically and mentally healthy had particular characteristics.
Family satisfaction following spinal fusion in Rett syndrome: a cohort study
This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.
Research
Use of equipment and respite services and caregiver health among Australian families living with Rett syndromeThis study assessed factors that could influence equipment and respite services use among Australian families caring for a girl/woman with Rett syndrome and...